Star Gazing – Watching and Waiting

I consider myself a cultural tourist, a pop culture star gazer.  So many of us want to know what’s happening in the lives of celebrities.  I’m certain that that’s what’s contributed to the rise in popularity of so many reality shows that chronicle the day to day lives of stars; why we sometimes don’t mind waiting in line at the grocery store to get another peek at the cover story detailing what’s new in the lives of singers, actors, TV personalities, and sports figures.  I’m not so “devoted” anymore, but there was a time that with each new publication or each new episode, I’d be watching and waiting to see what’s next.

Today I got a chance to see some of my most admired superstars and did a different type of star gazing.  I was at the briefing for the release of the American Association for Cancer Research (AACR)’s Cancer Progress Report 2016.  I had the opportunity to hear from some superstars – researchers and doctors who are paving the way for more breakthroughs that can increase survival and quality of life.  I got to hear from superstars, the survivors and their families who have faced grim prognoses, but with determination and their own research, took newly approved cancer fighting therapies and participated in clinical trials.

The leadership of the AACR provided an overview of some key focus areas:

  • Precision medicine
  • Immunotherapy
  • Prevention

They provided an overview of recent FDA approved cancer fighting drugs.  There was also an overview of the Cancer Moonshot Blue Ribbon Panel’s recent recommendations.

It was an information rich day and, as happens whenever I’m in the presence of other cancer survivors, I was so inspired.  I think researchers and survivors agreed that there is still much to be done.  But, equally, we are encouraged by the progress in the cancer fight.  In addition to my pop culture star gazing, I include these among the most admired celebrities.  The children, women and men who brave cancer, their caregivers and the researchers and doctors who develop and administer the cancer fighting and lifesaving therapies.  I’ve said that I hope to see an end to cancer in my lifetime.  I’m always encouraged by progress.  So for these celebrities, for the next breakthrough, I’ll be attentively watching and waiting.

Melanie A. Nix – Triple negative breast cancer survivor.  Resilience Coach, Reconstructionist™ and Health and Wellness Advocate.  Always striving to color outside of the lines when defining my new normal.

Thumbs Up from My Kids: Prayers for a Cancer-Free Future for Them

AACR Cancer Moonshot panel

(Photo of Early-Career Investigators from left to right: Kara A. Bernstein, PhD; Major K. Lee, IV, MD, PhD; Christine M. Lovly, MD, PhD; Paul A. Northcott, PhD; Jose G. Trevino, II, MD)

My 9 year old daughter and 11 year old son give me thumbs up or down when I have to miss an activity in their extremely busy pre-double digits and preteen lives.  They know “mommy works in cancer” and are forgiving if my advocacy conflicts with their schedules.  And, I get thumbs up from both for missing today’s summer afternoon activities as I attended the American Association for Cancer Research (AACR) Congressional Briefing on “Seizing Today’s Opportunities to Accelerate Cancer Research: An Update on the National Cancer Moonshot Initiative and a Dialogue with Early Career Investigators”.

Working in cancer can foster a range of emotions as you see advocates succumb to disease or promising treatments fail to achieve their intended results.  But, the best days are those that highlight advances as well as showcase the current and future generation of researchers and clinicians who’ve dedicated themselves to answering the unanswered questions about the many diseases that are cancer and are searching for more ways to: prevent cancer; expand screening options; increase survival; and ultimately eradicate cancer.

I was beyond impressed with their passion and dedication to not only treating patients, but also educating their patients and being visible in the communities that they serve.  They addressed a variety of topics that impact the current and future standard of care including:

  • NIH funding
  • National Cancer Moonshot Initiative
  • Precision Medicine Initiative
  • Immunotherapy
  • Health Equity
  • Clinical trials diversity
  • Biology of tumors

There was also an encouraging discussion on pediatric cancer.  Beyond discussing these issues, the researchers’ and clinicians’ dedication was palpable.

Their research is so important to me, having lost my young mother, aunt and many young cousins to cancer.  When I was diagnosed with triple negative breast cancer in 2008, I asked God to let me survive to watch my kids grow up.  I appreciate every opportunity to be with them, but also appreciate their understanding of those times when our schedules conflict and I have to miss an activity because of my commitment to working in cancer.  I’m thankful for their thumbs up today.  I left the briefing enthusiastic, reenergized and also hopeful.  I’m hopeful that the work that these researchers do will allow my kids, despite hereditary cancer in our family, to have a cancer-free future.

I’m off to play with my kids.  Today was a great day.

Melanie A. Nix – Triple negative breast cancer survivor.  Resilience Coach, Reconstructionist™ and Health and Wellness Advocate.  Always striving to color outside of the lines when defining my new normal.

 

Zora Brown, The World Remembers

Zora Brown, the world misses you.  But, your friends and colleagues have ensured that the world will remember  your warrior spirit and your tireless commitment to breast cancer advocacy and ovarian cancer advocacy.  THANK YOU. Yesterday, we had the honor of celebrating the Dedication of the Zora Brown Mammography Suite at the Capital Breast Care Center.  And, there have been more:

Zora’s Lounge for Patients and Families at Howard University Cancer Center https://www.facebook.com/friendsofzorabrown

C-Change honored Zora’s work with them as a member since their inception. She served on the Board of Directors and Executive Committee. http://c-changepublications.org/2013%20Tribute%20Book/index.html#/8/

AACR honored Zora who was a trustee for the AACR Foundation

http://webcast.aacr.org/console/player/20852?mediaType=podiumVideo&

#ZoraBrown #breastcancer #ovariancancer #pioneer #advocate #BRCA1 #CBCCinDC #AACR #CChangetogether #HUCC #mammogram

ZB Mammography Suite program Mel posting and ZB Suite Mel and Meaux posting at ZB Suite ZB lounge plaques Mel by ZB lounge plaques