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Ask For What You Want

If you don’t know this about me already, you’ll get to know it – I learn a lot from my children and their youthful fearlessness and innocence has been a welcome beacon of hope during my survival journey.  They’ve not been jaded by major life disappointments and, consequently, share their vigor with me.   They were very young; my daughter was 19 months old and my son 4 years old when I was diagnosed.  My thin frame and bald head are very distant and almost non-existent memories for them.  But, unknowingly, the support they provided to me during my diagnosis and treatment is irreplaceable, incomparable and invaluable.

A while ago, my children and I were at an event for my now 6 year old daughter.  As a reward for her and all of the other participants completing the event, she was given the choice of any flavor lollipop in the bucket.  My 9 year old son, who had not participated in the event, asked if he could get a lollipop as well.  As an immediate knee jerk reaction, I told him that the rules indicated that the lollipops were only for those who had participated.  Nonplussed by this, my son – ever the tenacious young man – decided it didn’t hurt to ask the person responsible for the lollipops.  I guess the teachings of my husband and I do sink in as we have guided our children, not to break rules, but to ask for what they want.  My son asked and was immediately allowed to pick the flavor he wanted.  He and my daughter left the event smiling and excited about the oncoming sugar rush.

I’m never a proponent of breaking rules that will hurt or harm another, but in the new normal, the rules are different and often have to be defined by you as the survivor, and as the fighter.  Old rules, paradigms and frameworks often have no place in the new normal and when causing no harm to others, should easily be broken.  As you design the most beautiful new normal you can have, you have to ask for what you want, work for it and there may often be a sweet surprise involved.

Melanie A. Nix – Triple negative breast cancer survivor.  Always striving to color outside of the lines when defining my new normal.

 

 

 

Playing the Game, Managing the Clock and Surviving Triumphantly

Have you ever watched a sports game where the score is close near halftime and after halftime unbelievable plays are made, a previously losing team outscores their opponent and shockingly wins the game?  Or, have you ever turned on the news or looked at the cover of a major newspaper or magazine and seen the story of an underdog team that forces a game into overtime, enough time to be triumphant?  One of the consistent messages you’ll hear when the team is asked “how’d you do it?” is “we kept playing, managed the clock and believed we could win”.

As a triple negative breast cancer survivor, a fifth generation cancer patient who has experienced the devastating cancer losses, the words of winners resonate with me.  I’ve often viewed cancer as a formidable and undefeatable opponent.  There is something that I call the dichotomy of cancer, while surviving you can feel at one moment invincible and a moment later feel completely vulnerable wondering if cancer could strike once, could it strike again, harder and with ultimate finality.  I’ll never know what my final outcome will be, but I know that I’ve learned the best way to face cancer, to survive on my terms, is to do what the underdogs do in the Big games, to make the big plays that count, believe that I can win and use all of the time on the clock.

When I was diagnosed at the age of 38, I looked at my life similar to a basketball or football game, with four quarters and maybe possible overtime.  I marked my breast cancer diagnosis as my halftime and decided that I’d do everything in my power to make sure that my next two quarters (or last half) would be played with vigor, that I wouldn’t spend a minute on the sideline, playing every minute of the clock.  However, during my five years of surviving I’ve had a slight change.  Playing doesn’t mean that I have to be physically active every moment of the game, but I do need to be constantly working on my winning strategy that does include time outs (see 1/2/14 blog A Restful Mind and a Recharged Spirit in 2014).  But, I’m now looking at more of a baseball paradigm, a game that has nine innings, a seventh inning stretch (break time yay!) and can go into extra innings.  My strategy is to manage the clock by extracting all that I can out of every minute, prepare for a lot of innings, even force some extra innings and survive victoriously.  And I’ll keep playing hard because I believe I can win.

Melanie A. Nix – Triple negative breast cancer survivor.  Always striving to color outside of the lines when defining my new normal.

A Restful Mind and a Recharged Spirit in 2014

As we start the new year, I want to write about something that is vitally important to us all and something around which we could all make a resolution – get more rest, unplug, restore.  I recently had some situations that provided illustrations of why rest is so important.

Last month, I was driving and my car radio kept blinking on and off.  As a lover of music, I hate driving in a quiet car and love to always have some music playing while I’m driving.  I kept pushing the power button trying to force the radio to power up and stay on.  The more I tried, the more it kept giving me a quick blink and light up as if it was going to come on and then shut off just as quickly.  After a while, I decided it might be pointless to keep trying especially since I needed to focus on the road and not on my radio.  So I just left it off and let it “rest”.  When I got to my destination, I had to turn off the car and get out.  A few minutes later, I was back in the car.  When I turned on the car, the radio came on with no problems and no more erratic behavior.

Last month I also had been having a lot of trouble with my home cable box.  As a lover of movies (music and movies are my thing) I was irked that I wasn’t able to see any good on-demand movies.  I tinkered with my box, doing everything in the troubleshooting guide.  In addition, I also spent a few hours on the phone with customer care trying to resolve the issue.  After exhausting all of my options and those provided by customer care, I was still unable to get my cable box working.  Exhausted myself, I finally just unplugged every single plug (plug going from cable box into TV, plug from TV to the outlet, all plugs) for a while and let it rest.  After a few minutes, I plugged in all the plugs and began browsing the guide to select my next great movie.

All of this was eerily similar to my own life.  When I’m exhausted, I just don’t work well, if at all.  Sometimes I push myself only to achieve the law of diminishing returns.  An all-nighter is no longer productive for me; it only produces irritability for the next several days and no tangible results, achievements or accomplishments.  It’s the voice in my body telling me to rest.

I’ve always been a lover of naps, especially a rainy Saturday afternoon nap.  But more than ever, I love all types of rest and it doesn’t have to be sleep, but just time to unplug and recharge.  There is no way I can overemphasize the importance of rest and how it has been beneficial to my emotional, physical and spiritual healing journey.  So, as you start the year and make all types of resolutions, many that will no doubt require your energy and focus, remember how key a restful mind and a recharged spirit can be to achieving those goals. Happy resolutions.  Happy recharging.  Happy 2014.

Melanie A. Nix – Triple negative breast cancer survivor.  Always striving to color outside of the lines when defining my new normal.

Bottle Half Full Isn’t Always Good

Hanae Mori perfume bottleThis is my bottle of my favorite perfume, Hanae Mori.  It is a great fragrance that my then boyfriend, now husband, bought for me on a Caribbean vacation about 15 years ago.  This is time when the bottle half full isn’t a good thing.  The other day as I walked past this half full perfume bottle, I was irritated with myself and had to do a little self talk.  The reason this bottle is half full and not completely empty is because I put it on a shelf to take down and wear only for special events.

Well, I definitely need to change my definition of special events.  When I survived breast cancer, I made a list of things I loved to do and said that I would do more of them.  I outlined all of the things that have brought me joy from the small (going to movies and comedy shows) to the large (traveling throughout the Caribbean), but somehow in these last 4 years and 10 months, there have been too many times that I let “life” get in the way.  The irony is that I know, more than ever, that no day is promised.  Life is the reason I should be celebrating.  Waking up is a special event.  Listening to music (yes, music was on my list) is a special event.  Having the opportunity to have a conversation with my husband, 9 year old son or 6 year old daughter is a special event.  All of the moments of my life – a life that is not guaranteed – are special events.

So, I plan to empty this bottle quickly.  (Somehow, I’ve got to get back to the Caribbean soon :-).  When I get up in the morning, I’ll dab some on and do what I said I would do, what I’ve urged others to do – celebrate survival, celebrate life ’cause they are special events.  EVERY DAY!

Melanie A. Nix – Triple negative breast cancer survivor.  Always striving to color outside of the lines when defining my new normal.  October 7, 2013

Overcoming, surviving and telling your story: Venus Williams, Serena Williams, and Me

On the first day of National Breast Cancer Awareness Month 2013, I want to talk about telling our stories.  I recently watched Venus and Serena, a documentary about, arguably, the most competitive and highest achieving tennis players in history.  The documentary focuses on 2011, but weaves in many other years from the sister’s childhood to their many championship wins into adulthood.  What was particularly profound to me was their resilience – from injury, defeat and illness.  Their tenacity.

I watched the story with pride and in awe of what these two beautiful, young African-American women have accomplished at a young age.  But, I also watched their honesty and vulnerability, them allowing cameras to follow them to some private spaces – hospitals and doctor’s offices – as their shared their thoughts about winning, losing, illness and rebuilding.  It took me back to many conversations that I’ve had with my husband, sister and friends about my survival.  For me, my story seems like a no brainer – do everything you can to survive and have a great quality of life.  But, to my family and friends, they often remark in awe about my journey from breast cancer diagnosis to treatment and survival.  And, when I think about many events I’ve attended with and conversations I’ve had with survivors, I’m always in awe of and inspired by their triumph and survival.  I’m encouraged and often feed off of their energy, especially when I’m facing challenging times.

So, as Venus and Serena shared their stories of overcoming sexism, racism, adversity and illness, it resonated with me.  As a triple negative breast cancer survivor, I know a bit about overcoming.  I know how important it is to hear stories of triumph, especially survival.  But, the world will only hear the stories if we, as survivors, tell them.

I’ve been at different points along my journey.  And, I’ve seen so much more in my own family as a fifth generation breast cancer patient surrounded by countless relatives who’ve battled cancer.  But, I’ve heard and witnessed stories of fortitude and such incredible strength (including those of my late mother and late aunt) that encouraged me during my darkest, most hopeless moments.  And, I’ve also had the blessing of having others share with me their being inspired by my survival.

Our stories of triumph, especially survival – we must share them.  We cannot deny the power of our survival and the determination, commitment, prayers and even obstacles that guided our survival.  Thank you Venus and Serena for what you’ve done for the sport of tennis, especially for females and African-Americans.  You are Champions.  Thank you for further inspiring the champion in me.

I am a champion – a breast cancer survivor of almost five years.  I’m grateful that I’ve lived to tell my story.  For all of my survivor sisters, please tell yours.  There’s undeniable power and strength in our stories.  Most of all, our stories can provide that mustard seed of faith that inspires another.  So, with the gift of having more breath in our bodies, let’s use it to give someone else a gift – the gift of hope and inspiration.

Melanie A. Nix – Always striving to color outside of the lines when defining my new normal

October 1, 2013

#breastcancer #breastcancersurvivor #triplenegativebreastcancer #breastcancerawarenessmonth #VenusWilliams #SerenaWilliams #tennis #champion #survivor

Valentine’s Day – Matters of the Heart

485245_10151462653575240_1438229617_nThe picture of the running shoes and online game of solitaire are two things that help me maintain a steady heartbeat. The running shoes for my 3x–4x weekly jog to keep exercise as a priority in my life and help reduce stress and the online game — a mindless, harmless pastime – that takes me away from the stress of the day to maintain calm. On Valentine’s Day, especially, we need to focus on matters of our own heart — literally.

On Valentine’s Day and always I wish you health, happiness and peace.

Always striving to color outside of the lines when defining my new normal.

Keep Climbing

On a Christmas Eve airplane flight, I was very concerned as we left Hartsfield-Jackson Atlanta International Airport on a wintry day with an oncoming storm. During the record breaking winter, storms were blanketing much of the United States. A cool, grey and rainy day, with declining temperatures, I was more than anxious as we prepared for takeoff.

We experienced some turbulence as the flight began its ascent and I looked out of my window onto the grey ugliness. As we began to climb, it didn’t take long for the flight to become smooth and for us to break through the clouds. As we broke through the clouds, I saw a beautiful site of a sea of celestial clouds accented by big beaming rays of sun. In just a few minutes, we had moved away from the winter storm into a slice of heaven.

I was reminded of the Christmas Eve trip this past weekend when I was on another flight and witnessed another beautiful sea of clouds. It made me think of the lessons I learned just a month earlier:

  1. If you keep climbing, you can put a lot of distance between you and the storm
  2. It’s okay to be nervous and anxious, but keep climbing
  3. Breakthroughs can happen quickly – it can be a short distance and a short time period between doom and gloom and majesty
  4. Turbulence and discomfort are often harbingers of positive change
  5. Sometimes we need to rely on our angels to pull us up and out of “hell” and into heaven. This day it was the pilots and flight attendants. For me, it’s my close family and dearest friends.

I believe that the beauty that transcends all of the gloom is God’s reward for having the courage to climb. KEEP CLIMBING!

Always striving to color outside of the lines when defining my new normal

My First Mammogram

Today, I was at my six year old’s soccer game speaking with one of the other soccer moms. During a break, she leaned over and whispered to me, “I got my first mammogram this week. I know it’s breast cancer awareness month and I thought it was a good time to get my mammogram.” I was glad that she shared her information with me, but more elated by her enthusiasm.

It was refreshing to know that she is excited to take charge of her health. I believe she is in her 40s and obviously has been impacted by the national breast cancer awareness month campaigns and messages she has heard about breast health. And, I think she felt comfortable sharing with me because she knows that I’m a young breast cancer survivor. As we left the game, I told her that I know that she might be anxious until she receives her results but that I would keep her in my thoughts for a mammogram that indicates normal, healthy breasts.

So why and I excited and why do we know it’s important to get mammograms? It’s not like #voting; we don’t get an “I voted” sticker to wear to show our civic responsibility and pride. It’s not like going to the pediatrician’s office for the first time; we don’t get a lollipop or other treat to reinforce a focus on living a healthy life and ensuring excitement to return for future appointments. For many, a mammogram is an uncomfortable exam that can be preceded by anxiety and fear. But for all of the potential emotions and feelings leading up to and immediately following a mammogram and for the seemingly absent instant gratification, there are many great benefits from getting your first mammogram and continuing to get mammograms.

  1. Your first mammogram serves as a baseline for doctors to use in detecting abnormalities and as a basis for determining any future breast changes as you continue to get mammograms.
  2. A mammogram can be used as a tool to detect breast cancer early, earlier than can be detected through a physical exam. EARLY DETECTION CAN SAVE YOUR LIFE.
  3. Your family, friends and loved ones will be grateful to you for taking charge of your health; making yourself a priority. You can only be good for others if you are good to yourself!

So, to my soccer mom friend and to all of the women who have decided to get your first mammogram, I applaud you. Continue to make yourself a priority and take charge of your health. Keep getting your mammograms. I wish you continued good health and a great life.

Breast Cancer, A Mother’s Day Gift and My Definition of Super Motherhood

Mother’s Day makes me ponder all the things that mothers do that makes them deserving of their own day of celebration and honor. This year, the thing that makes me deserving and honorable, the best thing I ever did for my children was battle and survive Triple Negative Breast Cancer, one of the most aggressive and recurring sub-types of breast cancer. When I was diagnosed at 38, my son was 4 and my daughter was 19 months. This diagnosis forced me to reexamine my definition of motherhood and my role as a mother.

18 months later, this is my first Mother’s Day post diagnosis that I’m not planning for chemo on Tuesday or scheduling a pre-operative physical for my next surgery. I’m not struggling to walk a city block or throw a ball with my kids. I’m not (generally) too exhausted to read a book, watch a movie or play a board game with my kids in the evenings after work. And, I can peel an orange for their snack. I can do these and many things that were daunting and impossible tasks, on Mother’s Day last year, while I was battling cancer, on chemo and recovering from multiple surgeries.

One of the worst times of my life, a sometimes helpless and lonely time, was a time that I abandoned my quasi-normal routine and huddled with my medical team to give myself some good odds for a good quality of life and some more Mother’s Days with my children and my husband. But, it also made me refocus my hopes for motherhood, the ways I want to challenge, encourage and support my kids – being their role model – the legacy I want to leave for them. And, I want to be sure that I leave an indelible imprint on their hearts and their souls.

What’s the best way to do this? There have been times when I got caught up in the “supermom” hype, questioning and second-guessing every decision that didn’t conform to the socially and politically “acceptable” norms. Reading any number of published articles on motherhood can only compound this with the unrealistic picture of the perfect PTA mother, whose perfectly shaped brownies greet the breastfed kids upon their arrival from school; whose kids always have matching socks, lunch with peanut butter and jelly sandwiches cut into perfect geometric, or better, animal shapes; who can play the piano, violin, harp; speak English, French and Spanish (sign language too); are asleep in their own bed at 7:30pm every night; can tell time on a non-digital watch and head their own Political Action Committee, all by the age of 4. Any deviation can prompt self doubt and questioning “am I a good mother”. Ahhhh, the pressure.

But, I can say unequivocally that I’m a great mom who has given her children a great gift, the gift of my time. Time to watch my son learn how to read. Time to listen to my daughter sing throughout the house. Time to walk beside them as they ride their bikes to the playground near our home. Time to hold their hands when they are frightened in a new environment. Time to be a guide and help them learn how to play nicely in the sandbox. Time to discipline when they blatantly do wrong. Time to kiss the boo-boo when they fall. Time to hug when they are disappointed. Time to protect them, time to expose them to new things, time to love them unconditionally every second, every minute, every hour of every day. Time to watch them blossom in God’s garden and be proud.

Their socks may not always match, they may never master multiple languages, instruments or get to every soccer, basketball or swim practice on time and with the right equipment. I surely don’t meet the standard of the archetypal supermom, but I am super and I am mom. My precious son and daughter have told me so and they are arguably the only ones who should be judging.

As mothers we are all, at one time or another, battling and surviving something. It may be the demanding job that didn’t deliver the work life balance it promised, but the paycheck keeps the family afloat in a depressed economy. It may be the huge socio-economic disparity that distances you from the other families at your child’s school, but the school provides them with an enriching academic and social environment. It may be a chronic ailment that keeps you from attending every recital, but allows you to be a great one-on-one coach at home. There are many choices, often difficult, hand wringing choices that we make to provide what we have determined is the best for our children. At one point or another, we may all be conflicted, concerned, unsure and scared.

And, especially if you find yourself in the unenviable situation of being a mom battling breast cancer. Be proud of yourself for having the courage (no matter how fleeting) to battle and the capacity to nurture your children no matter how limited your physical strength. Fight for yourself. Fight for your children. If their normal changes, let them show you how resilient and adaptable they can be.

Before me, my mother battled breast cancer for most of my childhood. I don’t resent her because I couldn’t go to a popular summer camp that she had planned for me after third grade, but I hold priceless memories of that summer and the time I had spending it with my mother, sister, grandmother, cousins, aunts and uncles that summer after her first mastectomy. I didn’t fall behind in elementary school because chemo drained my mother’s energy and she was too tired to check my homework every night. I did well in school and went on to get two degrees. I don’t remember mommy making me geometric shaped sandwiches or registering me for every extracurricular activity. But, I do remember her patience as I bounced from piano to flute and back to piano, never becoming truly great at either one. I remember her unconditional support, her applause and smiles, words of praise after my recitals. I remember her laughter and the comfort of her hugs. I remember her handwriting on encouraging notes. I remember her love. I remember that the best gift she ever gave me was her fighting spirit. She epitomized the definition of supermom, a real supermom, they way I’m patterning myself now.

I have a strong family history of breast cancer and death from the disease before age 50. I am in remission. I have no idea what my journey holds, but I pray that I defy my family’s odds. A lot of times, my faith is shaky and I don’t know what to hold on to. But, I need just reach out and hold onto my babies and get lost in their embrace to get some grounding. As time passes, I may not remember all the words on a mother’s day card they give me, but I’ll always remember the pedestal that they place me on. I’ll always be supermom to them and any moment I have with them, every moment I have with them, is my Mother’s Day gift.

So, on this second Sunday in May, 2010, write and live your own definition of super motherhood. It’s the best mother’s day gift that you can give yourself and your children. You earned it. You deserve it.

(Dedicated to my beautiful mom, an unassuming and humble pioneer who inspired me to walk my own path.)